This agency advocates for people who have rare diseases. Their goal is to bring a national awareness of the challenges faced by people with rare disorders. They encourage research and treatment for these conditions. Their Patient Assistance Programs help people get medications they could not otherwise afford. Clients can also get help with transportation and insurance. Please see the website for more information.
Connecticut Office
55 Kenosia Avenue
Danbury, CT 06810
203.263.9938
Washington D.C. Office
1779 Massachusetts Avenue
Suite 500
Washington, DC 20036
202.588.5700
Address
1900 Crown Colony Dr Ste 310
Quincy, MA 02169
United States
617.249.7300